As Breast Cancer month began, I spoke with MUHC Foundation President Julie Quenneville for my podcast. Our discussion can be heard here.
Most of our conversation covers the needs met by the annual Enchantée fundraiser for the MUHC Breast Clinic wellness program. This year’s event takes place next Thursday, October 18th, 2018 at the Le Mount Stephen from 6:00-8:00 p.m.
Tickets cost $200 each and can be purchased online.
The event is important enough for Montreal that I also prepared a story for the Suburban.
Julie and I are friends and members of the same club, so you’ll probably notice that some of my questions reflect a deep admiration of her work. Yet I’ve never before heard her talk about her Canadian identity and her work with the Banff Forum trying to figure out why kind of country we want to live in. Just goes to show you that podcasts can reveal fascinating facets of people.
Here’s the transcript of our conversation.
Julie Quenneville: [00:01:09] So we do a lot of fundraising that is globally for the priority needs of the MUHC. And we also do some very targeted fundraising that is for certain diseases departments and linked to of course the priority needs of those areas. So this event is particular to support the breast center and its own priorities. It’s a great opportunity to engage not only the staff, the physicians but also the patients and their families in a fundraising initiative. So when you’re very targeted, it allows them to feel like they’re giving back and really working towards a common goal. It can be quite empowering for the patients.
How did it start?[00:02:01] Well it was the committee that the three co-chairs actually sitting down with physicians and it started off with very specific needs. So not people in general but a need that is not being met in the community and that’s lymphedema. Have you ever heard of that? [00:02:20] No.
And so we actually have the Canadian lead physician who has been really leading the battle to get lymphedema care covered across the country. Her name is Dr. Anna Tower. And so it was in meetings obviously with Doctor Tower throughout the last couple of years, our foundation has always covered those services. I would say probably for the last decade. And in the breast center, we cover the services for our patients as well. And so anyone who is afflicted with this is at least will have access to care.
Now that’s not good enough. I think everyone else in the province should have access, but at least we’re doing our part in making sure that our patients are taken care of.
So the conversation started with lymphedema and saying to ourselves well with the patients how do we make sure that these services continue because they’re not covered by government and what else can we do to not only improve the survival rate but also improve their quality of life post-surgery and treatment?[00:04:30] So I just looked at a picture of what lymphedema is. This is extreme. The picture I’m looking at looks extreme in various ways. One just makes it look kind of blotty and then right up to legs that are clearly five times bigger than what they were prior to the disease. [00:04:59] For breast cancer patients, it would be mostly the arms, because it’s in the areas that you remove the lymph nodes, and in breast cancer that would be the arms. But it’s a high number 25 percent. In all the cancers, ovarian cancer and breast cancer, patients are the most affected by this. [00:08:32] I can see why they don’t want to leave home. They’ve become a whole different person and they’ve already just gone through a very traumatic situation anyway because they’ve just survived breast cancer. [00:08:40] Their quality of life is affected.
So we have three co-chairs. So Cynthia Price and Jo Anne Rudy have been heavily involved in the Quebec Breast Cancer Foundation throughout probably the last 20 years and Anna is a breast cancer survivor. So you know they were personally touched by these issues.
So, on top of the lymphedema services, the funds raised from this event—this is the second annual event—are going to the wellness program.
So that includes lymphedema but it also goes above and beyond. It includes:
Now I noticed last year you raised 120,000 dollars.
Exactly. That was our first event.
Yeah and how many patients would that cover
I don’t know off the top of my head but we can certainly pull that number and get back to you.
Okay perfect. And I noticed that this particular event is taking place at the Mount Stephen on October 18, which is a pretty good location. Was it there last year as well?[00:10:31]It was there last year as well. They’ve been a very good partner. It’s a very nice place and as you know it’s important in these fundraising events to find something that is central and is a bit different from other events. [00:10:39] So you had 200 guests last year. Do you know how many people are reserved so far this year? [00:10:43] We’re still in the middle of the sale. So we’re still confident to be able to surpass last year.
So this year we’ve added a partner foundation. We’re always striving to collaborate with others because that’s the best way to help our patients. So the Cedar’s Cancer Foundation, which is a foundation of the MUHC, has joined forces with us to make this event even more successful. The Cedar Cancer Foundation is heavily involved with the Rossy Cancer Network, which you know if you look back in past announcements, is funded obviously by the Rossy family and is a way to break down the silos between the MUHC, McGill, JJH and St. Mary’s for Cancer Care and all of the foundations related also contribute to the pot. Any time there is a funded project everyone is engaged and everyone contributes financially, including the Rossy Network.[00:11:35] OK. So then you have a network of people who are already behind your project when it gets launched.
In all of cancer, because the patients flow through these various areas, you know we have incredible complementarity where we don’t duplicate the services. There are certain cancers which we are specialized in. Certain cancers will go to the Jewish. And of course, there are some cancers that go to St. Mary’s. So this way we make sure that the patients are always in the best place and are being treated by the best team possible for their cancer.[00:11:59] Did you find last year that there were new partners this year because of the event last year? [00:12:06] Well it allowed us to start a conversation. And that’s that’s the key right? Even though we’re not raising millions through a fund-raising event, it allows us to meet patients who are interested in giving back and interested in getting involved. Absolutely there were many conversations that went in other directions and many many of the attendees became important donors as well to the program. [00:12:27] Well and then what happens in your job I think we have got a higher level in your job you actually handle a heck of a lot of events. How do you handle it? I mean just give me a sort of an overview of a day in your life it can’t be easy because everything is so emotional. I mean you’re dealing with life and death.
So a day in my life is every day I meet physicians, nurses or patients who are looking to work together to find solutions. But it’s also empowering Tracey.
There’s always no one of the things I learned in being in health care for this long is that there’s always a way to make it work. If you get everybody around the table engaged in finding a solution, you do find a solution, and that’s empowering.[00:13:43] Can you give me an example of something like that? Perhaps something not connected to this event. But in terms of something that looks like a very difficult situation that you were able to find a solution?
So he had a patient at one point and there were quite a few publications around this case, who came from one of the regions of Quebec so out of the McGill Territory who was 32 years and who was in palliative care at the time and no physician he had seen was able to identify the source so they had to put him into palliative care. For a father, that’s difficult to swallow at 32 years old. It turns out what he had was basically thrush in his brain. It’s really hard to get rid of thrush. It turns out that through the work that our physician did, he mixed medication and eventually he found that a mixture of two medications for other diseases actually worked for this patient and he was sent home to be with his family. And this is a physician that we fund heavily because of course, this kind of research is so ultra=specialized that it takes a lot of tender loving care but it’s very encouraging because it reminds us that we are able to pull off miracles when we have dedicated people.
So is that patient is still alive. Has he become one of your donors?
I can’t tell you that, because obviously, that information is confidential.[00:15:23] But he is certainly unbelievably grateful and I’m sure every time he tells his story about what happened to him and his family it is important for the hospital and also important for Montreal.
It is a very very very powerful story and it shows that if you keep working hard, there are miracles. Not very many people think about a fundraiser as a miracle worker.
Well, we make the difference as a foundation we make the difference between quality and excellence. We fund innovation.[00:16:04] There is no government budget to fund innovation. That is really the drive that the community has. There’s also no budget in the government for development of new equipment. So when there’s a piece of equipment a new piece of technology on the market, the foundations support that. The existing budget is really just for the replacement of the existing platform. So what we do is we make the difference between quality care and excellent care which is what we all want and what we should all demand. [00:16:37] And well how much do you have specific about how much your foundation supports above and beyond the budget of the MUHC. [00:16:50It’s important to note that we don’t fund items that are covered in the operating budget. We always cover what’s above and beyond. So just to make sure that we don’t confuse that. We raised last year 24 billion in revenue plus our investments. So that was a record-breaking year for us. That’s a 25 percent increase in revenue. [00:17:17] Congratulations.
How long have you been there?[00:17:24] It’ll be three years in October.
So that result is really in part due to your leadership. You can take credit for a lot of that.
It’s thanks to the entire team, the staff, the board and the physicians who are working with us that we were able to have that kind of success.[00:18:29] Now donors are all patients.
Do you have a relationship with any of the francophone funders or foundations? Do you do any joint projects?[00:18:50] So we’ve had a very long joint corporate campaign with the CHUM Foundation and this was to build the two new hospitals. It was a great success. We had a wonderful collaboration between the two foundations and the two institutions and we have you know we are preparing now for our next big fund-raising initiatives and some of them will be in collaboration not only with them but we hope with other hospitals across the province. The funding agents across the country for research are asking for it and the donors are asking for it as well that we work more and more together. So we plan to do that.
I also sit on the board of directors with a really important group called the Banff Forum where we strive to find solutions to break down those barriers across the country from east to west. We’re meeting next week and this is part of on my personal time one of the areas that I find most important and I hope to be able to contribute.
We should be defining what kind of country we want to live in in the next 20, 30 years. So it’s a group of very very passionate young Canadians.
Although I’m not so young, they are very young and very engaged. We meet officially for a conference once a year, but we have many chapter provincial meetings as well and seminars. We talk about the environment and indigenous issues. We talk about politics. Many politicians from every party come and speak with us as well to be able to have that diversity of conversation. We talk about culture. And it’s really about building that curiosity and seeking solutions and all of the members who—we are very careful to welcome the members that represent different diversity of different age groups and different cultural backgrounds and make sure that these are all individuals that are also incredibly engaged in their communities and so they bring back this information and knowledge to their own work into their networks.
And so the meeting next week is actually in Yellowknife. We’re going to Inuvik first and then in Yellowknife. We’ll be visiting from villages communities and we’ll be hearing from them are their challenges and seeing it for ourselves. I’m hoping to have some time to go visit some of the clinics that are there as well. And somehow, of course, it’s impossible not to have an impact on perception.[00:26:40] We’re all very anxious to hear from them Yeah exactly. Well, will you have any presentations about your experience in the future?
None are planned.[00:26:53] This is a closed group because we want to make sure that everyone can speak very openly. But of course, you know you cannot leave such an event without changing as a person in your own perception changes. So I’d be happy to speak with you afterwards if you’d like. [00:27:14] That would be wonderful thank you very much.
Earlier this year, I attended a bilingual lunchtime discussion led by Sherry Simon about power struggles in multilingual cities at McGill’s Centre for Interdisciplinary Research on Montreal.
As Keynote speaker, Simon, a Professor in Concordia’s French Department presented a collection of stories she edited within a book called “Speaking Memory: How Translation Shapes City Life.”
Even though this book is a collective, it is a result of my obsession with Montreal and with Montreal-like cities which I’ve studied over the last ten or more years,” she said. “It all started in the early 1990s in my neighbourhood, which is Mile-End, when I became aware that the day-to-day life in my neighbourhood, the way languages were handled, the way people thought, the way identities were construed were diametrically opposed to what I was hearing on the radio and what I was reading in the newspapers. That was a shock.”
My focus was a profile for the February issue of the Montrealer, but Simon’s work is so fascinating, I decided to present our conversation in this podcast as well.
As a Jewish Anglophone who grew up in Snowdon, went to school in Westmount and spent much of her life integrating into Montreal’s Francophone culture, Simon knows how it feels to be an outsider. Unlike many of us, however, she has used her minority status as a strength in understanding and explaining changing identities. She is one of the few Anglophones I’ve met who speaks about the French and English dichotomy in Quebec from a position in which she absolutely believes that it is vitally important to keep the French language dominant in the city. Despite not agreeing with her, I couldn’t help but recognize how well-considered her opinion is.
Simon is currently a professor in the French Department at Concordia University and author of “Genders in Translation,” “Cities in Translation,” and “Translating Montreal: Episodes in the Life of a Divided City” in addition to “Speaking Memory.”
What some people see as a disadvantage I turned into an advantage,” she said. “I remember that very existential sense that I had as a kid when I took the bus across town and felt unwelcome. Bilingualism in Montreal affects everything that we are. Culture is constantly being transferred back and forth.”
Simon was born on April 16, 1948. The Royal Society of Canada and of the Académie des lettres du Québec count her as a member. In 2009 she was a Killam Research Fellow and in 2010 she received the Prix André-Laurendeau from l’Association francophone pour le savoir (ACFAS).
During our conversation, we discuss the bonjour/hi controversy, Quebec’s influence on France when it comes to gender, the improvement in Francophone pride in their own identity, and the removal of gender from Canada’s national anthem.
This is a change that is long overdue,” says Simon. “Language regularly changes. This is totally normal and fundamental. It’s absolutely essential that people recognize themselves in the language they use.”
A fascinating part of our conversation for me was our discussion about Montreal’s fundamental shit from English to French between 1940 and 1980.
People don’t realize that what was happening on the French side of town was exciting to a whole group of Anglos at the time,” said Simon. “My favourite character of that time was Malcolm Reid, a journalist in the 70’s who wrote about Francophone Montreal. He wrote this wonderful book about the Shouting Sign Painters. It’s a fabulous book about how the poets and songwriters were transferring the identity of the city and how exciting that was for English Montrealers to watch.”
Sherry Simon’s next book will be a tourist guidebook to polyglot places.
Once my Montrealer profile is online, I’ll link to it, but in the meantime, I highly recommend that readers who understand French watch Simon’s bilingual speech called “The Flow of Languages, the Grace of Cultures.”
Today, 33 major academic and pharmaceutical research partners publicly agreed to share health data in an open science system to combat Alzheimer’s, dementia, mental illness, spinal cord injuries and other diseases that affect the brains of approximately 11 million people across Canada.
They did so because they now have secure computer resources within a network called the Canadian Open Neuroscience Platform (CONP).
CONP was made possible through a $10 million dollar grant from the Canada Brain Research Fund. David Lametti, Member of Parliament for LaSalle-Émard-Verdun and Parliamentary Secretary to the Minister of Innovation, Science and Economic Development announced the grant earlier today.
The project is designed to allow researchers to share, store, analyze, and disseminate data using 8,000-10,000 terabytes of storage space from Compute Canada. Partners have also agreed to create and participate in inter-disciplinary training through the new organization.
This step is the next crucial element in creating the vision announced on December 16, 2016 by Larry Tanenbaum in the presence of Prime Minister Justin Trudeau. Tanenbaum, the Chairman and CEO of Kilmer Van Nostrand Co. Limited engineering construction company, donated $20 million dollars to create the Tanenbaum Open Science Institute at The Neuro.
The Open Science Institute operates under five philosophies designed to spur on innovation through unusual collaboration.
Partners agree to:
In addition to the Neuro at McGill, partners in todays announcement included: the University of British Columbia, Simon Fraser University, University of Calgary, University of Alberta, Western University, Brock University, University of Toronto, York University, Queen’s University, Concordia University, McGill University, Université de Montreal, Université de Sherbrooke, Université Laval, and Dalhousie University.
Four years ago, Verdun borough mayor Jean-François Parenteau agreed to build social housing on a municipally-owned lot on Gaetan Laberge instead of a larger project containing both condos and social housing.
It isn’t built yet in part because the land in question has to be decontaminated before residential units can be built. Add that price, which is likely to be in the millions of dollars to the cost of the social housing buildings, whatever form they take, and you get a challenging fundraising goal.
And that’s in addition to the many emotional and security barriers to building fully-subsidized apartments for vulnerable and impoverished people.
No matter where they live, or what their income might be, people can occasionally experience personal crises due to addiction, mental health challenges, and uncontrolled anger. Unfortunately, it can be much harder to hide these kinds of crises in a public building, even when most of the residences within it are private. That means that neighbours find out about every incident, and assume that unusual situations occur more often than they do. The stigma makes it hard to build social housing into the fabric of communities.
People don’t want those units too close to home,” said a condo developer in response to a question about integrating social housing into his projects when I first looked into this issue four years ago. “They’re afraid their property values will go down.”
Boroughs don’t like lower property values either, nor do they appreciate handling security and social problems that are difficult to hide in large impoverished neighbourhoods. Despite a 2005 City of Montreal policy that requires 15% of social housing and 15% of affordable housing in all new developments with more than 200 units, boroughs and cities can make exceptions. Often, they require cash payments towards parks and public spaces instead.
The result is a waiting list of 25,000 people for social housing while there’s a glut of condominiums for sale. That’s 3,000 more people on the waiting list than when I covered this issue four years ago. And things then were bad:
Quebec, New Brunswick, Nova Scotia and PEI each have more than a year of inventory to absorb,” wrote Robert Kavcic, a senior economist with BMO Financial in June, 2014. “In most cases, those are decade highs that exceed even levels seen at the height of the Great Recession.”
Maintaining pure social housing after it’s built can also be a challenge; in that model, tenants pay only 25% of their income in rent, regardless of how little they earn. Today, the social housing banner also includes low-income apartments, cooperative housing projects and seniors’ residences run by non-profit entities.
Some non-profit housing options exist, but most of today’s pure social housing units were created with federal and provincial government financing in the sixties and seventies. In 1969, the federal government set up social housing neighbourhoods across the country through the Canada Mortgage and Housing Corporation (CMHC).
By 1982, people weren’t as concerned about social housing as they had been earlier. The CMHC began selling all of its buildings to local non-profits, a process they completed in 1994.
Some imaginative local politicians reacted to ensure that the units remained accessible to low-income people. In Pierrefonds for example, local politicians helped tenants turn a 750-unit building called Cloverdale into Canada’s largest housing cooperative.
As inspiring as that project was, other regions didn’t duplicate it. LaSalle Heights was owned by the same person, but instead of following the coop creation model, it was sold to private for-profit interests in 1988. The Canada Housing and Mortgage Corporation battled the decision in court for years, but ultimately lost the right to keep the units reserved for low-income tenants. Instead, the CMHC set up grants for tenants and partnered with the owners to keep the complex open for another fifteen years. That agreement officially expires next year and locals worry that the site is targeted for major gentrification, especially since the 750 units are no longer tracked by any public agency.
The only social housing that is tracked carefully is that managed within the provincial HLM program. The Office municipal d’habitation de Montréal (OMHM) operates 20,810 low-rent apartments within this program, while the Office municipal d’habitation de Laval (OMHL) operates another 1,120.
Unfortunately, almost all of the apartment buildings in the program were built in the seventies, so they require annual maintenance and occasional renewal projects that creates inconveniences for everyone and give the program a bad name. Renovations, when they occur, cost millions of dollars.
Hundreds of residents of a building on Plamondon, for instance, only just moved back into their units last June after three-and-a-half years and $10 million dollars in renovations that included removing mold.
Many other buildings need the same treatment. At the same time, Montreal faces a severe shortage of affordable family-sized rental units.
Verdun’s project remains one to watch to see whether any social housing solution can be found.
If Montreal’s prominence in the evolution of an artificial intelligence industry in the past five years is primarily due to the leadership of Yoshua Bengio, we are all lucky he became a father and is a beloved son.
Two main things changed me,” he says. “Relationships with women taught me a lot about humanity and emotions, and my children: they really transformed me. I mean it was like a part of my heart hadn’t opened yet. You know having to take care of somebody and knowing that that person depends on you is really a transformative experience. When I was in my late 20s, it was a big thing.”
Today, the University of Montreal professor is a sought-after collaborator. He’s founded or cofounded five different institutions and has been a key ingredient in both Google and Microsoft setting up artificial intelligence centres in Montreal. He recently became the scientific director of a new non-profit linking his current school with his alma mater, McGill. That organization will be publicly launched once it finds a CEO.
He’s also the co-founder of Element AI, an entrepreneurial start-up dedicated to showing companies how artificial intelligence can help businesses run more effectively, save costs or both.
Indirectly, both of those efforts stem from two research laboratories founded by Bengio in the early 1990’s: the Laboratoire d’Informatique des Systèmes Adaptatifs (LISA), and the Montreal Institute for Learning Algorithms (MILA).
MILA has been called “the largest concentration of deep learning researchers in the world.”
Read more in the September 2017 issue of the Montrealer.